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Q & A with Jim Gardner

June 11 , 2010

Q & A with Jim Gardner

Jim Gardner, CEO and President of CQL has just finished his term as chair of the Alliance for Full Participation (AFP).  He sat down for a Q & A about his work with AFP and the movement for increased employment for people with disabilities.

What is the Alliance for Full Participation?

The Alliance for Full Participation (AFP) is a formal partnership of leading developmental disabilities organizations with a common vision—to create a better and more fulfilling quality of life for people with developmental disabilities.  AFP also supports a network of state teams, dedicated to promoting full participation for people with developmental disabilities. 2003:  AFP is founded as a vibrant collaboration of the key stakeholders in the developmental disabilities field focused on a common purpose—to enhance full participation for all.

In 2005, AFP hosted a Washington DC Summit to create an action agenda for full participation that is incorporated into the strategic planning of all member organizations.  In addition, AFP created an interactive DVD series to educate the public about the promise of full participation for people with developmental disabilities. AFP’s 2005 Summit, “Many Voices, One Vision”, drew over 2,400 people from all branches of the developmental disability community, including self advocates, family members, researchers, service providers and direct support workers.

What is CQL’s role with AFP?  

CQL was a founding member of AFP in 2003. After the Summit in 2005, CQL took over the coordination of AFP including looking after the web site and following up on inquiries including disseminating a series of video tapes on the Town Hall Meeting moderated by CNN reporter Frank Sesno that took place during the Summit and a white paper on Medicaid Moving Forward. Unfortunately, resources were not available to continue to actively advance the AFP’s collaborative work in supporting state teams or in policy development.

In late 2007, AFP revisited the feasibility of maintaining the collaborative network.  While members raised the possibility of sponsoring another event, they were more committed to the importance of eleven leadership organizations affirming a single positive message about people with developmental disabilities participating in the life of the community. 

Why did you take on the leadership role of AFP in July of 2008?

In July 2008, I took on the role of General Manager of AFP.  The following year, in May of 2009 the members of AFP amended the bylaws and elected me Chair of the organization, a position that I held for one year.  I took this on for several reasons. The AFP grew out of a series of informal collaborations over the previous decade.  I think I was one of the few members of the AFP board remaining from the original group of people that met over the brown bag lunches in the American Association of Intellectual and Developmental Disabilities (AAIDD) office in the late 1990’s and later organized the Developmental Disabilities Quality Consortium in early 2000. In addition, the AFP Board is similar to that of the Board of CQL – A board composed of representatives of other national organizations which can be a very powerful force.  The first AFP national summit demonstrated the value of working together across organizational lines.  I wanted to continue that work and position AFP for even greater representation and inclusiveness in the coming years.  Finally, I really enjoy the challenge and experience of finding opportunities to work together and make a difference rather than focusing on positions and history that work against each other.

How did AFP come to select Employment for People with Disabilities as its focus?            

First, we all agreed that AFP could be most effective if it focused on a single issue.  Employment emerged as the key issue for self-advocates.  We also identified our challenge in terms of poverty rather than a disability issue only.  Moreover, there was a collective concern that energy and success on the employment was beginning to wane.  So in 2009 we announced our new campaign -- “Real Jobs – It’s Everybody’s Business,” and established its goal of doubling the employment ratefor people with developmental disabilities by 2015 from 22 to 44%.  We recognized the realities of the recession and the terrible economic climate but that only increased the urgency of the challenge.  The reality is that people with disabilities have struggled to find and keep jobs even in times of economic prosperity, and there is no point in delaying the initiative.  The AFP wants the prevailing practice that people with intellectual disabilities have to wait their turn to find employment to end.  Employment data shows that the majority of people with intellectual disabilities who are employed, are in low wage, entry level positions, in service occupations that have little or no advancement potential, leading to a life of poverty.

Looking back over your term as AFP Chair, what are you most proud of? 

I’m very proud that we demonstrated both confidence and patience.  We were convinced about the importance of the employment agenda and confident that we would succeed.  The recession and the change in administration in Washington delayed the economic and political support for our agenda.  But our membership worked both the public and private sectors.  The Institute for Economic Empowerment under the leadership of Martin Gerry has supported and developed a wonderful AFP web site, and we’re currently in very serious discussions with Bank of America for operational support. I’m confident that we’ll have the resources, recognition and support to achieve our goals for the summit and the goals for a 50% increase in employment. 

I’m very pleased that we have increased the membership of AFP. Self Advocates Becoming Empowered (SABE) has become an even more integral part of the dialogue and is represented at our meetings by three to four representatives.  Julie Petty currently shares the co-chair role with Rene Pietrangelo.  Betty Williams from Indiana and Victor Robinson from DC regularly attend our meetings in Washington, DC.

Karen Flippo has done a remarkable job of organizing the state teams.  I’m really looking forward to their arrival in DC in the fall of next year.  Making change at the local level – in your own community – is a theme that AFP is leading.  I think it’s a change strategy with great potential – especially when we can integrate it with the public policy work that the AFP member organizations undertake in Washington DC and state capitals.

I’m proud of, but even more thankful to, our advisory committee of John Butterworth, David Mank, Cary Griffin, Charlie Lakin, Dale DiLeo, Richard Luecking, Wendy Parent, Suzy Hutcheson, and Bill Kiernan for their support and encouragement.  And finally, a huge thank you Carol Walsh, for a thorough, competent and professional job in managing this array of organizations.

What are you looking forward to for AFP?

I’m confident that AFP will be a major catalyst in promoting real employment for people with intellectual and developmental disabilities and that the emerging state teams will continue to play major leadership roles in their states across a variety of initiatives. I hope that AFP will take the lead in developing a larger coalition of people with disabilities at the national, state, and community level.

What’s next for AFP?

On November 17-18, 2011 at the Gaylord National Harbor Hotel just outside of Washington, DC, AFP will convene a ground-breaking employment summit marked by a sense of partnership, purpose and collaboration. 

Over 1500 attendees will work together to plan, organize and share best practices that will lead to a substantial increase in the number of people with developmental disabilities in integrated employment.  Countless more will participate at local viewing stations set up throughout the county.  Innovative program design will ensure that the work completed in Washington will have a lasting impact on our society.

The AFP Summit will mark the mid-point in AFP’s “Real Jobs—It’s Everyone’s Business” five year campaign.  In addition to the Summit, AFP will be providing education and networking opportunities through an interactive online community, newsletters, and webinars.


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