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Exploring Factor One: Person-centered Assessment and Discovery for People with Disabilities

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girl in wheelchair
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A Story

Janet is a young woman who recently completed her public school education. The team at her independent living agency had a planning meeting about what to do next. Janet was proficient in maintaining a clean home, was very good at doing dishes and her interest inventory indicated a strong interest in school. After interviewing, testing and meetings, the team agreed that the most suitable job for Janet would be working in the cafeteria doing dishes at the local university.  Janet started doing that job and received high praise from her supervisor and job coach – but she isn’t really happy doing that work. Janet has told friends that she wants to be with the students. So a switch was made – a new job bussing and washing tables in the cafeteria would work – she would be with students. It was still cleaning, still at the university—it would be perfect!

Janet did a great job.  The job coach reported that Janet’s job performance was excellent.  However, Janet still was unhappy with her job.  The job coach wondered what to do differently. Janet has the skills and is very successful, but she is not happy. Why?  What is the problem?

While Janet’s team did indeed ask questions when doing her assessment, they got caught up in the goal of employment rather than learning about what Janet wanted to do at this point in her life. The “aha” moment occurred when Janet’s sister discovered that her sister was interested in the university – not for employment, but to take part in classes with other students.  

Person-centered Discovery and Assessment is about continually learning.  Asking questions and listening to what the person says and often to what the person does not say.

What is Person-centered Assessment and Discovery?

Assessment is the process of gathering information to learn about what is important to and for the person.  The purpose of assessment is to deepen understanding of the person.   Information may be available from a variety of sources but the most important and reliable learning is what is gathered in listening to and spending time with the person, his/her family and friends. 

Information about eligibility and levels of support may come from formal intelligence and adaptive behavior scales.  The person and the support team might learn from medical reports, therapy evaluations and checklists of activities of daily living about what the person does or does not do independently. How to use that information and its importance to the person is gained from the person. 

There are many tools to guide learning about people, which all follow the same principles:
1.    The person is the focus;
2.    Family and friends are partners;
3.    Focus is on gifts and capacities;
4.    Looks to the future;
5.    Built on a shared commitment to action; and
6.    Discovery is on-going.

MAPS and PATH are learning tools that use graphic facilitation to record what is known about a person and plan for their future.  Essential Lifestyle Planning is a tool that focuses on balancing what is important to the person with what is necessary to support the person’s health, happiness and safety.  CQL’s Personal Outcome Measures® guides the discovery of people’s goals and preferences for supports so that there is a deeper understanding about how the person defines quality of life.

Learning about people requires listening.

Resources

http://www.inclusive-solutions.com/pcplanning.asp 

This website offers an overview of person centered learning and planning tools as well as other resources

http://www.c-q-l.org/QIP_Assessment.aspx  

CQL’s Quality in Practice Guide on Assessment offers practical suggestions to learning about people

http://www.inclusion.com/planningtools.html   

Inclusion Press provides an array of planning tools that are helpful in learning about people





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